Amyotrophic lateral sclerosis 1

Diagnosis and Testing

Who else in my family should I test for Amyotrophic Lateral Sclerosis?

The standard in genetic testing is to test someone in the family who has the diagnosis of familial amyotrophic lateral sclerosis (ALS) first. However, if no one with ALS is available, testing an individual without ALS may also be appropriate. In general, children should not be tested until they are at least 18 years of age. Genetic testing for familial ALS is an individual decision and not all family members may wish to be tested. Genetic counseling is recommended for all family members to discuss the benefits and limitations of testing.

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