Is there clinical research happening on Alstrom syndrome?
As of February 2021, there are 6 studies involving Alstrom syndrome listed on ClinicalTrials.gov, www.clinicaltrials.gov. This is a government website that provides regularly updated information about federally and privately supported research and clinical trials. This is not an exhaustive list of current research. Two of the studies are recruiting patients, one is active but not recruiting, two are finished, and one is active but not recruiting.
Patients or families should talk with their physicians about whether a clinical trial is right for them. Genetic counselors and medical geneticists are also excellent sources of information about ongoing clinical trials and can offer advice about the pros and cons of participating in such a trial. The National Society of Genetic Counselors website offers a Find a Genetic Counselor tool on its website. This can help people find a genetic counselor within the United States.The website for the American College of Medical Genetics and Genomics has a search function that can help people in the United States find a medical geneticist.