Alpha-thalassemia/mental retardation syndrome, x-linked

Living with

What is the life expectancy for alpha-thalassemia X-linked intellectual disability syndrome?

Because alpha-thalassemia X-linked intellectual disability syndrome is a rare condition, there is not a lot of information about how long affected individuals live. Many affected males have been known to live well into adulthood, but there are also reports of some passing away as young boys, often under the age of 5. The most frequent reason for early death is pneumonia. These types of respiratory infections are likely connected to the frequent feeding/swallowing problems seen in these individuals, leading to food going into the lungs.

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