Are there good support groups for alpha-thalassemia?

Cooley's Anemia Foundation

330 Seventh Avenue #900

New York NY 10001

Phone: 800-522-7222 (toll-free)

Fax: 212-279-5999


Thalassaemia International Federation (TIF)

PO Box 28807

Nicosia 2083 Cyprus

Phone: +357 22 319129

Fax: +357 22 314552


Thalassemia Patients and Friends provides discussion forums for questions and specific topics. thalpal

The Thalassemia Foundation of Canada provides events, news and research updates. thalassemia canada

Isabella's Journey provides a long list of associations, organizations and resources from all parts of the world. Isabella's Journey

Northern California Comprehensive Thalassemia Center is a thalassemia treatment center in Oakland, California that provides care and research for patients with thalassemia. No Calif Thalassemia Center

They also have a newsletter: No Calif Thalassemia Center Newsletter

The Vancouver Thalassemia Society of BC offers information and events: BC thalassemia

Thalassemia Support Foundation provides information. Helpthals

Thalassemia Action Group is a national peer support network of patients that provides information on thalassemia. They can be contacted at (800) 935-0024 or (800) 522-7222 (e-mail:

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