Alpha-thalassemia
Organizations
Are there good support groups for alpha-thalassemia?
Cooley's Anemia Foundation
330 Seventh Avenue #900
New York NY 10001
Phone: 800-522-7222 (toll-free)
Fax: 212-279-5999
Email: info@cooleyanemia.org
Thalassaemia International Federation (TIF)
PO Box 28807
Nicosia 2083 Cyprus
Phone: +357 22 319129
Fax: +357 22 314552
Email: thalassaemia@cytanet.com.cy
Thalassemia Patients and Friends provides discussion forums for questions and specific topics. thalpal
The Thalassemia Foundation of Canada provides events, news and research updates. thalassemia canada
Isabella's Journey provides a long list of associations, organizations and resources from all parts of the world. Isabella's Journey
Northern California Comprehensive Thalassemia Center is a thalassemia treatment center in Oakland, California that provides care and research for patients with thalassemia. No Calif Thalassemia Center
They also have a newsletter: No Calif Thalassemia Center Newsletter
The Vancouver Thalassemia Society of BC offers information and events: BC thalassemia
Thalassemia Support Foundation provides information. Helpthals
Thalassemia Action Group is a national peer support network of patients that provides information on thalassemia. They can be contacted at (800) 935-0024 or (800) 522-7222 (e-mail: ncaf@aol.com)
http://thalassemia.com/living-with-thal-stages-teen.aspx#gsc.tab=0
