Alpha-thalassemia

Organizations

Are there good support groups for alpha-thalassemia?

Cooley's Anemia Foundation

330 Seventh Avenue #900

New York NY 10001

Phone: 800-522-7222 (toll-free)

Fax: 212-279-5999

Email: info@cooleyanemia.org

www.cooleysanemia.org

Thalassaemia International Federation (TIF)

PO Box 28807

Nicosia 2083 Cyprus

Phone: +357 22 319129

Fax: +357 22 314552

Email: thalassaemia@cytanet.com.cy

www.thalassaemia.org.cy

Thalassemia Patients and Friends provides discussion forums for questions and specific topics. thalpal

The Thalassemia Foundation of Canada provides events, news and research updates. thalassemia canada

Isabella's Journey provides a long list of associations, organizations and resources from all parts of the world. Isabella's Journey

Northern California Comprehensive Thalassemia Center is a thalassemia treatment center in Oakland, California that provides care and research for patients with thalassemia. No Calif Thalassemia Center

They also have a newsletter: No Calif Thalassemia Center Newsletter

The Vancouver Thalassemia Society of BC offers information and events: BC thalassemia

Thalassemia Support Foundation provides information. Helpthals

Thalassemia Action Group is a national peer support network of patients that provides information on thalassemia. They can be contacted at (800) 935-0024 or (800) 522-7222 (e-mail: ncaf@aol.com)

http://thalassemia.com/living-with-thal-stages-teen.aspx#gsc.tab=0

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