Is there clinical research going on for alpha-thalassemia?
As of June 2019, there are many studies, completed and ongoing, for blood disorders, including alpha-thalassemia. Please consult Clinicaltrials.gov for a list of the current studies in the United States.
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How do I find clinical research in alpha-thalassemia?
To find information about clinical research on alpha-thalassemia, look at clinicaltrials.gov. Once on the website, you can search for studies involving alpha-thalassemia. Keeping in contact with support groups can help you stay informed about the latest clinical trials and drugs. Following forums and reading what others have posted can alert you to any new trials or drugs. The Thalassemia International Federation also has information on current research and treatment.
How do I give money to help research in alpha-thalassemia?
Northern California Comprehensive Thalassemia center is a thalassemia treatment center that provides care and research for patients with thalassemia. Donations can be made at: thalassemia how to help
The Vancouver Thalassemia Society of BC provides funds for patients with thalassemia. http://bcthalassemia.org/showcontent.aspx?MenuID=1848