Alpha-1-antitrypsin deficiency


Are there any good support groups for alpha-1 antitrypsin deficiency?

As of 2019, there are over 80 support groups in the U.S. for people with alpha-1 antitrypsin deficiency. You can locate a support group at . There are also virtual support groups through the Alpha-1 Foundation. Individual support groups may vary. In general, support groups help people affected by alpha-1 to connect with others, learn more about the condition, raise awareness and funds, and provide emotional support.

The Alpha-1 Foundation is committed to finding a cure for alpha-1 antitrypsin deficiency (AATD) and to improving the lives of people affected by the condition worldwide. The Alpha-1 Foundation provides numerous services and support organizations for people affected by alpha-1 and maintains a network of alpha-1 specialty centers. Visit

The Alpha-1 Research Registry, Alpha-1 Coded Testing Study and more information about the Alpha-1 Foundation Genetic Counseling Program can be found at

AlphaNet is devoted to improving the lives of individuals with Alpha-1 through comprehensive disease management services, clinical research administration and consultative services. Visit AlphaNet's Big Fat Reference Guide (BFRG) is a comprehensive guide and self-management program available on the Internet for individuals living with Alpha-1. Visit

The COPD Foundation provides patients and families with information on COPD, treatment resources, support programs and an advocacy center. Visit

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me