Are there research studies for people with alpha-1 antitrypsin deficiency?
As of May 2019, there are many ongoing clinical trials and research studies to learn more about and develop better treatments for alpha-1 antitrypsin deficiency (AATD).
People with genetically confirmed AATD are invited to join the Alpha-1 Research Registry at www.alphaoneregistry.org. The Research Registry is a contact registry for people affected by AATD, and invites members to participate in trials as they come up. You can also view ongoing studies on that site, or at the ClinicalTrials.gov website at www.clinicaltrials.gov.