Alpha-1-antitrypsin deficiency

Clinical Research/Studies

Are there research studies for people with alpha-1 antitrypsin deficiency?

As of May 2019, there are many ongoing clinical trials and research studies to learn more about and develop better treatments for alpha-1 antitrypsin deficiency (AATD).

People with genetically confirmed AATD are invited to join the Alpha-1 Research Registry at The Research Registry is a contact registry for people affected by AATD, and invites members to participate in trials as they come up. You can also view ongoing studies on that site, or at the website at

Alpha-1 Foundation. Retrieved from Retrieved from

Alpha-1 at MUSC: A shared voice for patient empowerment. Retrieved from

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