Alagille syndrome

Organizations

Are there good support groups for Alagille syndrome?

The Alagille Syndrome Alliance (www.alagille.org) is a good place to start if you are looking for support. They host events every three years to help families connect with each other.

The Childhood Liver Disease Research and Education Network (ChiLDREN) (https://childrennetwork.org/) works with multiple groups to support patients and families and to connect people with rare liver conditions. Visit their website to learn more about the support groups they partner with to see if any are right for you.

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