How do I find a center of excellence in Alagille syndrome?
The Children’s Hospital of Philadelpphia (CHOP) has an Alagille Syndrome Clinical Care Program dedicated to treating children with Alagille syndrome. This program allows children to see all the specialists they need in one visit. The program also has a strong focus on research into Alagille syndrome.
If Philadelphia is too far for you, contact your local children’s hospital to see if they have recommendations for doctors familiar with Alagille syndrome. The liver center at your local children’s hospital is a good place to start!