Aicardi syndrome

Healthcare/Doctors

Are there any centers of excellence in Aicardi syndrome?

As of May 2019, there are no centers of excellence in Aicardi syndrome. One of the best ways to find a doctor familiar with caring for individuals with Aicardi syndrome is to talk with other parents at the Aicardi Syndrome Foundation.

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If my child has Aicardi syndrome, what specialist doctors should they see?

If my child has Aicardi syndrome, what specialist doctors should they see?

Management of children with Aicardi syndrome is based on their clinical and developmental manifestations and may include a number of medical and therapeutic specialties such as pediatric neurology or epileptology, neurosurgery, ophthalmology, orthopedics, gastroenterology, physical therapy, speech therapy and occupational therapy.

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