Agammaglobulinemia, x-linked

Organizations

Are there good support groups for X-linked agammaglobulinemia?

There are several support groups or organizations for X-linked agammaglobulinemia that provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. Support groups for X-linked agammaglobulinemia include:

Canadian Immunodeficiencies Patient Organization (CIPO)

362 Concession Road 12

RR #2

Hastings Ontario K0L 1Y0

Canada

Phone: 877-262-2476 (toll-free)

Fax: 866-942-7651 (toll-free)

Email: info@cipo.ca

Website: cipo.ca

Jeffrey Modell Foundation/National Primary Immunodeficiency Resource Center

747 Third Avenue

New York NY 10017

Phone: 866-463-6474 (toll-free); 212-819-0200

Fax: 212-764-4180

Email: info@jmfworld.org

Website: www.info4pi.org

Immune Deficiency Foundation (IDF)

40 West Chesapeake Avenue

Suite 308

Towson MD 21204

Phone: 800-296-4433 (toll-free)

Email: idf@primaryimmune.org

Website: www.primaryimmune.org

International Patient Organization for Primary Immunodeficiencies

Firside Main Road

Downderry

Cornwall, PL11 3LE United Kingdom

Phone: 441503250668

Email: info@ipopi.org

Website: http://www.ipopi.org/

Conley ME, Howard VC. X-linked Agammaglobulinemia. GeneReviews website. http://www.ncbi.nlm.nih.gov/books/NBK1453/ Accessed May 16, 2016.

Cunningham-Rundles C. Agammaglobulinemia. The National Organization for Rare Disorders website. http://rarediseases.org/rare-diseases/agammaglobulinemia/

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