Agammaglobulinemia, x-linked

Living with

What is the life expectancy of someone with X-linked agammaglobulinemia?

In the last couple decades the outlook for X-linked agammaglobulinemia (XLA) has dramatically improved. Most people will be able to live full, active lives and pursue whatever career and hobbies they want. However, XLA must be treated carefully in order to prevent serious infections that can damage organs or cause life-threatening complications. X-linked agammaglobulinemia is a serious, but treatable disorder.

Although X-linked agammaglobulinemia is treatable, people with XLA still have a greater risk of developing an infection than people without the disorder. They may miss more days of school or work, or require hospitalization more often than people who do not have the disorder.

Conley ME, Howard VC. X-linked Agammaglobulinemia. GeneReviews website. http://www.ncbi.nlm.nih.gov/books/NBK1453/ Accessed May 16, 2016.

Winkelstein JA, Conley ME, James C, Howard V, Boyle J. Status of Adults With X-Linked AgammaglobulinemiaImpact of Disease on Daily Lives, Quality of Life, Educational and Socioeconomic Status, Knowledge of Inheritance, and Reproductive Attitudes. Medicine (Baltimore). 2008 Sep; 87(5): 253–258.

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