How do I find a center of excellence in X-linked agammaglobulinemia?
One of the best ways to find a treatment center or physician with experience in treating a rare disease like X-linked agammaglobulinemia is to contact a support group. The Immune Deficiency Foundation and the Jeffrey Modell Foundation, and the International Patient Organisation for Primary Immunodeficiencies are support groups that provide such information and referrals for X-linked agammaglobulinemia.
The Immune Deficiency Foundation website
The Jeffrey Modell Foundation website