Adrenoleukodystrophy

Organizations

How can a family get more involved in the X-linked adrenoleukodystrophy community?

Many of the support groups have opportunities to take action to support awareness and research for X-linked adrenoleukodystrophy. For example, the Myelin Project has opportunities to participate in fundraisers and attend related conferences. ALD Connect offers memberships and opportunities to enroll in clinical trials.

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