Are there good support groups for adrenoleukodystrophy?
There are multiple support groups for X-linked adrenoleukodystrophy. Some of these groups include the Adrenoleukodystrophy Foundation, ALD Connect, ALD Life, the Myelin project, and the United Leukodystrophy Foundation. All of these support groups have an online presence. Additionally, the Adrenoleukodystrophy Online Support Group is a support group exclusively on the Internet.
United Leukodystrophy Foundation. http://ulf.org/who-we-are
ALD Foundation. http://aldfoundation.org/
ALD Connect. http://www.aldconnect.org/about_us.php
The Myelin Project. http://myelin.org/about-us/
Adrenoleukodystrophy Online Support Group. http://www.adrenoleukodystrophysupport.org/
ALD Life. http://www.aldlife.org/