Acyl-coa dehydrogenase, short-chain, deficiency of
Organizations
Are there good support groups for Short chain acyl-CoA dehydrogenase deficiency (SCADD)?
There are support groups for people with SCADD. Two groups which are familiar with SCADD are:
The Fatty Acid Oxydation Disorder Family Support Group.
and
References
- Fatty Acid Oxydation Disorder Family Support Group. (2016). FOD Family Support Group. Retrieved from https://www.fodsupport.org/index.htm
- United Mitochondrial Disease Foundation. (n.d.). UMDF. Retrieved February 2016, from http://www.umdf.org/site/pp.aspx?c=8qKOJ0MvF7LUG&b=7929671
More Organizations Content
Where do I find other people with Short chain acyl-CoA dehydrogenase deficiency (SCADD)?
Is there support for families whose child has died from SCADD?
Where do I find other people with Short chain acyl-CoA dehydrogenase deficiency (SCADD)?
The metabolic genetics clinic that cares for you or your family member may be able to help connect you with other families in your area with SCADD. There are also online family support organizations where you will be able to meet other families. Two groups which are familiar with SCADD are:
The Fatty Acid Oxydation Disorder Family Support Group.
and
References
- Fatty Acid Oxydation Disorder Family Support Group. (2016). FOD Family Support Group. Retrieved from https://www.fodsupport.org/index.htm
- United Mitochondrial Disease Foundation. (n.d.). UMDF. Retrieved February 2016, from http://www.umdf.org/site/pp.aspx?c=8qKOJ0MvF7LUG&b=7929671
Is there support for families whose child has died from SCADD?
It is very rare for a child to die from SCADD.
If a child does die of SCADD, grief support is available through the FOD support group at https://fodsupport.org/grief.
A grief support brochure is available at https://fodsupport.org/documents/Jan2019GriefConsultbrochure.pdf.
