Acyl-coa dehydrogenase, short-chain, deficiency of

Organizations

Are there good support groups for Short chain acyl-CoA dehydrogenase deficiency (SCADD)?

There are support groups for people with SCADD. Two groups which are familiar with SCADD are:

The Fatty Acid Oxydation Disorder Family Support Group.

and

United Mitochondrial Disease Foundation.

References
Show More Content Like This

More Organizations Content

Where do I find other people with Short chain acyl-CoA dehydrogenase deficiency (SCADD)?

Is there support for families whose child has died from SCADD?

Where do I find other people with Short chain acyl-CoA dehydrogenase deficiency (SCADD)?

The metabolic genetics clinic that cares for you or your family member may be able to help connect you with other families in your area with SCADD. There are also online family support organizations where you will be able to meet other families. Two groups which are familiar with SCADD are:

The Fatty Acid Oxydation Disorder Family Support Group.

and

United Mitochondrial Disease Foundation.

References
Is there support for families whose child has died from SCADD?

It is very rare for a child to die from SCADD.

If a child does die of SCADD, grief support is available through the FOD support group at https://fodsupport.org/grief.

A grief support brochure is available at https://fodsupport.org/documents/Jan2019GriefConsultbrochure.pdf.

We use cookies to ensure that we give you the best experience on our website. By continuing to browse this site, you are agreeing to our use of cookies.

Continue Find out more about our use of cookies and similar technology

This content comes from a hidden element on this page.

The inline option preserves bound JavaScript events and changes, and it puts the content back where it came from when it is closed.

Remember Me