Acute intermittent porphyria
Are there good support groups for acute intermittent porphyria?
The American Porphyria Foundation is a good resource for connecting with support groups in your area. Visit their website to get started looking for a support group near you. They also have online forums, including a caretaker support forum, if you would prefer an online support system.
- American Porphyria Foundation (www.porphyriafoundation.com)
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Where do I find other people with acute intermittent porphyria?
The American Porphyria Foundation is a great place to start if you are looking for other people with acute intermittent porphyria. You can become a member of the foundation and get connected to people all over the world with the condition. Visit www.porphyriafoundation.com to get started.
- Global Porphyria Alliance. American Porphyria Foundation. (http://www.porphyriafoundation.com/get-involved/global-porphyria-alliance)