Acute intermittent porphyria
Healthcare/Doctors
How do I find a center of excellence in acute intermittent porphyria?
If you are interested in finding a doctor who specializes in treating patients with acute intermittent porphyria, you can visit the Find a Doctor page on the American Porphyria Foundation?s website. Here, you can select the state in which you want to be treated and choose a doctor from there. This website also lists which cities have experts in porphyrias available.
References
- Find a Doctor. American Porphyria Foundation. (http://www.porphyriafoundation.com/content/Find-a-Doctor)
More Healthcare/Doctors Content
What specialist doctors should I see with acute intermittent porphyria?
If I have acute intermittent porphyria, what should my doctor know about managing the disease?
What specialist doctors should I see with acute intermittent porphyria?
If you have acute intermittent porphyria, you should see a porphyria specialist. They may also refer to you to a kidney doctor (nephrologist) or a liver doctor (hepatologist).
References
- Acute Intermittent Porphyria. Gene Reviews. (http://www.ncbi.nlm.nih.gov/books/NBK1193)
If I have acute intermittent porphyria, what should my doctor know about managing the disease?
Your doctor should keep an eye on your kidney and liver function if you have acute intermittent porphyria, especially if you are over 50 years old. They should also know that you need to avoid certain prescription drugs, such as barbiturates, sulfa-containing antibiotics, some antiepileptic drugs, progestagens, and synthetic estrogens.
References
- Acute Intermittent Porphyria. Gene Reviews. (http://www.ncbi.nlm.nih.gov/books/NBK1193)
