Acute intermittent porphyria

Clinical Research/Studies

Is there clinical research going on for acute intermittent porphyria?

There is a clinical trial for adeno-associated virus based gene therapy for acute intermittent porphyria (AIP) underway in Europe. This means that doctors are using a virus to deliver a working copy of the HMBS gene to the patient's body to replace the copy that is not working properly. Other than this, there are various other projects currently going on to look for treatments and triggers of AIP attacks.

To learn more about clinical trials, you can search this database.

References
  • Acute Intermittent Porphyria. Gene Reviews. (http://www.ncbi.nlm.nih.gov/books/NBK1193/)
  • Clinicaltrials.gov
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How do I find clinical research in acute intermittent porphyria?

How do I give money to help research in acute intermittent porphyria?

How do I find clinical research in acute intermittent porphyria?

If you are interested in being a part of a clinical trial for treatments for acute intermittent porphyria, clinicaltrials.gov is a great place to start looking. If you search for acute intermittent porphyria, you will find a list of clinical trials that are looking for people to join in.

References
  • Clinicaltrials.gov
How do I give money to help research in acute intermittent porphyria?

If you would like to donate money to help support research into acute intermittent porphyria, the American Porphyria Foundation is a good place to start. You can donate to them or look around their website for other organizations that accept donations.

References
  • http://www.porphyriafoundation.com

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