How do I find a center of excellence in achondrogenesis?
As of May 20, 2016 there are no centers of excellence for achondrogenesis
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What specialist doctors should I see with achondrogenesis?
Due to the fact that these conditions are lethal there are no specialists to see besides genetics to discuss family planning options and inheritance.
If I have achondrogenesis, what should my doctor know about managing the disease?
Due to the fact that the conditions are lethal the only management is palliative neonatal care.