22q11.2 deletion syndrome

Clinical Research/Studies

Is there clinical research going on for 22q11.2 deletion syndrome?

There is clinical research being conducted on 22q11.2 deletion syndrome. Clinicaltrialw.gov can provide up-to-date information on research being conducted on 22q11.2 deletion syndrome. You can also ask your doctor or genetic counselor about current and future clinical research focusing on 22q11.2 deletion syndrome.

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How do I find clinical research in 22q11.2 deletion syndrome?

How do I give money to help research in 22q11.2 deletion syndrome?

How do I find clinical research in 22q11.2 deletion syndrome?

Clinicaltrials.gov can provide up-to-date information on research being conducted on 22q11.2 deletion syndrome. Chromosome 22 Central, Inc. also provides information about clinical research http://www.c22c.org/research.htm. Nationwide Children's provides information about their personal clinical research related to 22q11.2 deletion syndrome https://www.nationwidechildrens.org/research/clinical-research/22q-clinical-research. For additional information on available clinical trials, please ask your doctor or genetic counselor.

How do I give money to help research in 22q11.2 deletion syndrome?

There are many foundations and support groups focused on 22q11.2 deletion syndrome. For example, Chromosome 22 Central, Inc. accepts donations in order to continue their mission of support and awareness of conditions related to chromosome 22 (http://www.c22c.org/donate.htm). They also have a c22c store from which purchases also support the group's mission. (https://www.cafepress.com/c22c)

The International 22q11.2 Foundation, Inc also uses donations to spread awareness about 22q11.2 deletion syndrome and stimulate research. Donations can be made through their website at http://www.22q.org/support-the-foundation/donate-now.

Another organization accepting donations is the VCFS 22q11 Foundation (http://www.vcfsfa.org.au/pages/make-a-donation.php). Donations help to run the foundation and provide education and awareness about 22q11.2 deletion syndrome. This foundation is locally active in Australia and New Zealand.

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