15q26 overgrowth syndrome
What support groups are there for 15q26 overgrowth syndrome?
While there are no support groups specifically for 15q26 overgrowth syndrome, there are support groups for rare chromosome disorders that patients with 15q26 overgrowth syndrome and their families may find helpful. UNIQUE (http://www.rarechromo.org) and Chromosome Disorder Outreach (http://www.chromodisorder.org/) are two organizations that provide information and support for patients and families affected by rare chromosome disorders.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/15q26-overgrowth-syndrome/organizations/2016 • DATE UPDATED: 2016-06-14