15q26 overgrowth syndrome
Do other people have tetrasomy 15q26?
As of March 2019, there are very few people reported who have 15q26 overgrowth syndrome. Therefore, there is no support organization specifically for 15q26 overgrowth syndrome. However, the Unique organization is a small charity that seeks to support families with rare chromosome disorders. You can reach them at the Unique website.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/15q26-overgrowth-syndrome/living-with/70081 • DATE UPDATED: 2019-03-19