15q26 overgrowth syndrome
Is there clinical research happening on 15q26 overgrowth syndrome?
As of March 19, 2019, there were no clinical research studies specifically for 15q26 overgrowth syndrome. However, a research study called "Rare Disease Patient Registry: Coordination of Rare Diseases at Sanford (CoRDS)" is listed on the Clinical Trials website at https://clinicaltrials.gov/ct2/show/NCT01793168. The purpose of this registry is to help speed up the progress of research into rare disorders by connecting patients who have rare medical conditions with researchers who study rare disorders.
UNIQUE (http://www.rarechromo.org) and Chromosome Disorder Outreach (http://www.chromodisorder.org/) are two organizations that provide information and support for patients and families affected by rare chromosome disorders. These organizations may be able to help identify research studies for patients who have 15q26 overgrowth syndrome.
If you are interested in searching for clinical research specifically for 15q26 overgrowth syndrome, visit www.clinicaltrials.gov and search for "15q26 overgrowth syndrome".
Antidote also offers a handy tool for finding clinical trials.
SOURCE: Emory University - Department of Human Genetics in collaboration with ThinkGenetic • https://www.thinkgenetic.com/diseases/15q26-overgrowth-syndrome/clinical-research/2010 • DATE UPDATED: 2019-03-19