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Supporting Rare Disease Day 2022

February 25, 2022 by Jennifer Dykeman

February 28th is Rare Disease Day! In the United States, a disease is defined as rare if it affects less than 200,000 people. It is currently thought that there may be […]

Advocacy, Education, News advocacy, Find a Genetic Counselor, GARD, Genetic and Rare Disease Information Center, National Organization for Rare Diseases, National Society of Genetic Counselor, NIH, NORD, NSGC, patient services, Rare Disease Day

Upcoming Events

Sep 20
September 20 - September 24

Fabry Family Education Conference and Camp 2023

Oct 17
October 17 - October 21

NSGC Annual Conference 2023

Feb 4
February 4, 2024 - February 9, 2024

WORLDSymposium on Lysosomal Disease Research 2024

Mar 12
March 12, 2024 - March 16, 2024

ACMG Annual Clinical Genetics Meeting 2024

Feb 2
February 2, 2025 - February 7, 2025

WORLDSymposium on Lysosomal Disease Research 2025

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Together let’s systematically accelerate detecting at-risk  individuals.

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